Lyme Disease is a serious and complicated illness and is often misdiagnosed and misunderstood in modern medicine practice. 

Lyme Disease got it's name from the town of Lyme, CT where a large number of children were being diagnosed with juvenile rheumatoid arthritis.  You can read more  about Lyme’s history here.

In 1981, a scientist, Willy Burgdorfer, found the connection between the disease plagueing Lyme, CT and the pathogen causing it. He discovered that a spirochete was causing Lyme Disease.  In 1982, the medical community honored Dr. Burgdorfer’s discovery by naming the spirochete Borrelia burgdorferi.

 When we say 'Lyme Disease', some of us are referring to the Borrelia burgdorferi infection. Yet others refer to Lyme disease as Borrelia burgdorferi and it’s coinfections, such as Babesia, Ehrlichia, Bartonella, etc. 

There is a large body of scientists who would like to see the name changed to "Lyme Disease Complex" or "Borrelia Complex" as many species of Borrelia have been discovered and have infected people from all over the globe. 

Lyme Disease is often referred to as the "great imitator”.  It can come on acutely with a fever and flu like symptoms or it can hang out dormant for a long while and wait for the body to become weakened via stress or a traumatic experience  It can wait for the perfect opportunistic moment to strike, which may be weeks, months or years away from the memory and correlation of a tick bite.

More than 50% of people that contract Lyme Disease do not have any recollection of a tick bite and less than 1/3 of people who contract Lyme have a bulls eye rash, otherwise refered to as an EM  (Erythema migrans) 

Lyme symptoms can vary from person to person. The pathogen will often go after the weakest part of the body. Since we all have different constitutions, we each present differently with symptoms. It can mimic so many other illnesses and that’s one reason why it’s so hard to detect and treat.

common lyme mis

So you think you may have lyme…what’s next ?? ~ TESTING!

How to find a LLMD (Lyme Literate Medical Doctor)~ Here’s a Map
You may ask why do I need a LLMD? Why can’t my General Practitioner help me? They very well may be able to, but the sad truth is that Lyme Disease is not covered in depth in most medical schools. Unless a practitioner is actively participating in continuing education on Lyme disease emerging science or intergrative practice, it may be challenging for them to help you. Honestly, if you do not respond well to treatment within an insurance approved timeline, their hands may be tied despite their best intentions. This is why most people seek help with practioners who are not bound by insurance limitations, but this gets costly for the patients.

Acute Lyme Disease is an acknowledged medical diagnosis. Six to eight weeks of Doxyclycline treatment is the current agreed upon protocol amongst educated Lyme literate physicans. However, according to the guidelines set forth by the IDSA & CDC, anything beyond 6 weeks on antibiotic treatment is outside of the CDC guideline protocol. At that point, the patient’s swollen knees, abnormal EEGs and MRIs, heart palpitations, low oxygen, abnormal labs, Bells Palsy, etc get classified as "Post Lyme Disease Syndrome" which is then defined as a mental condition. 

Insurance companies tend to not cover anything beyond IDSA/CDC guidelines. Physicians that continue to treat patient’s physical symptoms are practicing outside of CDC & IDSA guidelines and are therefore in jeopardy of being in the realm of malpractice. Numerous physicians have had their medical licenses taken away or have been sued by their state’s medical board for helping people with chronic Lyme disease.
Lyme patients and advocates have been protesting for decades to remove the corrupt members of the IDSA with no avail. Of the 14 current IDSA Lyme panel authors, 6 of them or their universities held patents on Lyme or its co-infections, 4 received funding from Lyme or co-infection test kit manufacturers, 4 were paid by insurance companies to write Lyme policy guidelines or consult in Lyme legal cases, and 9 received money from Lyme disease vaccine manufacturers. Some of them are involved in more than one conflict of interest. This is public knowledge and yet these IDSA board members haven’t been removed.

You know you have Lyme. How can you finally get better?…TREATMENT!

What to do if you’ve been bitten by a tick?

If you are new to Lyme Disease and need to further understand this complicated illness, this introductory video may help. Please understand that this video is several years old. Several new tests has come out since then, but I feel this video covers a lot of important information.

Here is a glossary of Lyme Terms to help you better understand blood tests, acronyms, etc

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